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Help With Autism Spectrum Disorder

Curated and updated for the community by APA

Autism Spectrum Disorder (ASD) is a complex developmental disorder that can cause problems with thinking, feeling, language and the ability to relate to others.

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  • Aug 11, 2015
What I wish I knew when my daughter was first diagnosed with autism

My name is Carolyn, and I’m the mother of two daughters, Kirsten (10 years old) and Kellie (9 years old). Kellie was diagnosed with autism in January of 2008 at the age of 4.

How early can autism be identified? What should parents do if they are concerned their young child may have autism?

Some of the signs of autism spectrum disorder (ASD) may be noticed before the age of 1, although a reliable diagnosis by an autism specialist can be made in children as young as 18 months of age. Unfortunately many children end up waiting until after their 4th birthday to be diagnosed with ASD. Delays in seeking an initial assessment and limited access to specialists are just a couple of factors that help to explain this delay. Children who have less severe ASD, or are from minority backgrounds, tend to be diagnosed later than those with severe symptoms. Researchers are developing ways of being able to diagnose autism at even younger ages, such as using eye tracking technologies. The diagnosis of autism is typically based on a clinical examination, which is often supported with other information and tests. There is no single scan or blood test that can independently diagnose autism.

My advice to parents is to trust their gut instinct when they are worried about their child and to seek the advice of their primary care pediatrician. This general assessment may then lead to a referral to a specialist who will perform a more comprehensive evaluation. Parents should also feel empowered to ask for a specialist opinion if they do not feel adequately reassured by a primary care evaluation.

Can children “grow out” of autism?

A small minority of children show considerable improvement in their ASD symptoms following diagnosis. While ASD has historically been considered a life-long condition, recent research has shown that the outcomes associated with an ASD diagnosis can vary considerably. Some people who were diagnosed with ASD in their youth may improve dramatically, and show little difference to people who have never had the diagnosis.

Whether these individuals “grew out” of autism, or simply responded exceptionally well to the therapeutic interventions remains up for debate. One should also question if the initial diagnosis of ASD was accurate in these cases. At the moment it is difficult to identify which children will “grow out” of autism, although those who have less severe symptoms, and those who obtain early access to the appropriate therapies appear to have better outcomes.

Adam's Story

12-yo-Male-2nd.jpg

Adam, a 12-year-old boy, was brought in by his mother for psychiatric evaluation. He had temper tantrums that were causing problems for him at school. She said that school had always been stressful for Adam and that it had become worse after he entered middle school.

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